FIBROMYALGIA:
It's Not "All In Your Head!"

 

Debbie Markel, CH, CNHP

Certified Herbalist, Certified Natural Health Professional

3430-D Anderson Hwy , Powhatan , VA   23139

804-598-5352 ~ www.herbalconsultant.com

DO ANY OF THESE STATEMENTS SOUND FAMILIAR??

“Everything hurts.”

“I just feel soooo tired all the time.”

“My brain is foggy.”

 

MY STORY

In 1978, my husband left me in a violent rage.  I suffered severe emotional trauma and a minor breakdown.  I was the mother of 2 boys ages 1 and 3 and had just gone back to work after staying home for 4 years.  My income was next to the poverty level and I had just bought a house that I couldn’t afford on my own.  I was only in my mid-20’s, but I began having mysterious aches and pains, trouble sleeping, IBS, memory problems, TMJ and constant fatigue.  I felt like I was 85!  I went to doctor after doctor, none of whom could diagnose anything wrong.  Tests for rheumatoid arthritis, lupus and other autoimmune disorders came back negative.  Nobody knew about Fibromyalgia at that time or if they did, they didn’t think of it.  They all recommended anti-depressants.  I WASN’T DEPRESSED! 

For over 20 years I suffered in silence.  Finally, at age 45 or so (when I was also having peri-menopausal symptoms on top of it all), I met with a naturopathic physician from Canada .  She not only diagnosed the Fibromyalgia, but she made several recommendations for diet, herbs and supplements that changed my life.  Since then (I’m in my early 50’s now), I have felt 100% better and am symptom-free most of the time.  Because of this experience, I began studying herbal and natural medicine.  Fibromyalgia changed my life in more ways than one!     

 

FIBROMYALGIA SIGNS AND SYMPTOMS

  • Anxiety
  • Depression
  • Disturbed sleep
  • Dizziness
  • Dry eyes and/or mouth (Sicca syndrome)
  • Fatigue
  • Frequency of urination
  • Headaches
  • Hearing sensitivity
  • History of injury - sometimes serious but often only minor within the year before the symptoms started.
  • Irritable Bowel Syndrome
  • Joint pain and swelling
  • Memory lapses
  • Muscular pain, aching and/or stiffness (especially in the morning)
  • Osteoarthritis
  • Pain after exertion
  • Paresthesia (tingling feelings)
  • Raynaud’s phenomenon (hands go dead white and cold)
  • Restless leg syndrome
  • Rheumatoid arthritis
  • Silicon Breast Implant Syndrome (SBIS)
  • Skin sensitivity
  • Substance (drugs/alcohol) abuse problems.
  • Symptoms are almost always worse in cold or humid weather.

 

TO BE “OFFICIALLY” DIAGNOSED

Nobody knows the exact cause and there are many theories, but all doctors will look for the following:

  • Widespread pain in all four quadrants of the body for a minimum duration of three months
  • Tenderness or pain in at least 11 of the 18 specified tender points when pressure is applied (see figure below)

   

How Disabling is Fibromyalgia (FMS):

  • 100 out of 394 patients (that is 25.3%) with FMS (all female) and 12 out of 44 males (27%) were shown in a recent survey to be sufficiently badly affected by the condition as to be unable to work - they were effectively disabled.
  • Almost all the others surveyed claimed that their FMS affected their job performance very badly.

 

DRUG THERAPIES

The following drugs may be prescribed by a physician.

  • Sleep disturbances are often treated successfully with low doses of tricyclic antidepressants like Elavil. Benzodiazepines (like Xanax) may also be used.
  • Psychological disturbances can be treated with tricyclic antidepressants and sedative-hypnotics.
  • Pain in the bones and muscles can be treated with lidocaine or procaine (injected into points where pain is greatest) or with capsaicin (used topically).  Ibuprofen may also help briefly reduce muscle pain.

SIDE EFFECTS OF TRICYCLIC ANTIDEPRESSANTS INCLUDE:

Abnormal movements, anxiety, black tongue, blurred vision, breast development in males, breast enlargement, coma, confusion, constipation, delusions, diarrhea, difficult or frequent urination, difficulty in speech, dilation of pupils, disorientation, disturbed concentration, dizziness on getting up, dizziness or light-headedness, drowsiness, dry mouth, excessive or spontaneous flow of milk, excitement, fatigue, fluid retention, hair loss, hallucinations, headache, heart attack, hepatitis, high blood pressure, high fever, high or low blood sugar, hives, impotence, inability to sleep, increased or decreased sex drive, increased perspiration, increased pressure within the eye, inflammation of the mouth, intestinal obstruction, irregular heartbeat, lack or loss of coordination, loss of appetite, low blood pressure, nausea, nightmares, numbness, rapid and/or fast, fluttery heartbeat, rash, red or purple spots on skin, restlessness, ringing in the ears, seizures, sensitivity to light, stomach upset, strange taste, stroke, swelling due to fluid retention in the face and tongue, swelling of testicles, swollen glands, tingling and pins and needles in the arms and legs, tremors, vomiting, weakness, weight gain or loss, yellowed eyes and skin.

Side effects due to rapid decrease or abrupt withdrawal from tricyclic antidepressants include: Headache, nausea, vague feeling of bodily discomfort

Side effects due to gradual dosage reduction may include: Dream and sleep disturbances, irritability, restlessness

Do not drink alcohol while taking this medication.

It is especially important that you consult with your doctor before taking tricyclic antidepressants in combination with the following:

Airway-opening drugs such as Sudafed and Proventil

Antidepressants that raise serotonin levels, such as Paxil, Prozac, and Zoloft

Other antidepressants, such as amoxapine

Antihistamines such as Benadryl and Tavist

Barbiturates such as phenobarbital

Certain blood pressure medicines such as Catapres

Cimetidine (Tagamet)

Disulfiram (Antabuse)

Drugs that control spasms, such as Bentyl and Donnatal

Estrogen drugs such as Premarin and oral contraceptives

Ethchlorvynol (Placidyl)

Major tranquilizers such as Mellaril and Thorazine

MAO inhibitors, such as Nardil and Parnate

Medications for irregular heartbeat, such as Tambocor and Rythmol

Painkillers such as Demerol and Percocet

Parkinsonism drugs such as Cogentin and Larodopa

Quinidine (Quinidex)

Seizure medications such as Tegretol and Dilantin

Sleep medicines such as Halcion and Dalmane

Thyroid hormones (Synthroid)

Tranquilizers such as Librium and Xanax

Warfarin (Coumadin)

SIDE EFFECTS OF BENZODIAZEPINES INCLUDE:

More common side effects may include: Abdominal discomfort, abnormal involuntary movement, agitation, allergies, anxiety, blurred vision, chest pain, confusion, constipation, decreased or increased sex drive, depression, diarrhea, difficult urination, dream abnormalities, drowsiness, dry mouth, fainting, fatigue, fluid retention, headache, hyperventilation (too frequent or too deep breathing), inability to fall asleep, increase or decrease in appetite, increased or decreased salivation, impaired memory, irritability, lack of coordination, light-headedness, low blood pressure, menstrual problems, muscular twitching, nausea and vomiting, nervousness, palpitations, rapid heartbeat, rash, restlessness, ringing in the ears, sexual dysfunction, skin inflammation, speech difficulties, stiffness, stuffy nose, sweating, tiredness/sleepiness, tremors, upper respiratory infections, weakness, weight gain or loss

Less common or rare side effects may include: Abnormal muscle tone, concentration difficulties, decreased coordination, dizziness, double vision, fear, hallucinations, inability to control urination or bowel movements, infection, itching, loss of appetite, muscle cramps, muscle spasticity, rage, sedation, seizures, sleep disturbances, slurred speech, stimulation, talkativeness, taste alterations, temporary memory loss, tingling or pins and needles, uninhibited behavior, urine retention, warm feeling, weakness in muscle and bone, weight gain or loss, yellow eyes and skin

Side effects due to decrease or withdrawal from Xanax: Blurred vision, decreased concentration, decreased mental clarity, diarrhea, heightened awareness of noise or bright lights, impaired sense of smell, loss of appetite, loss of weight, muscle cramps, seizures, tingling sensation, twitching

Do not drink alcohol while taking this medication.

Never combine Xanax with Sporanox or Nizoral. These drugs cause a buildup of Xanax in the body.

It is important to check with your doctor before combining Xanax with the following:

Amiodarone (Cordarone)

Antihistamines such as Benadryl and Tavist

Carbamazepine (Tegretol)

Certain antibiotics such as Biaxin and erythromycin

Certain antidepressant drugs, including Elavil, Norpramin, and Tofranil

Cimetidine (Tagamet)

Cyclosporine (Neoral, Sandimmune)

Digoxin (Lanoxin)

Diltiazem (Cardizem)

Disulfiram (Antabuse)

Ergotamine

Fluoxetine (Prozac)

Fluvoxamine (Luvox)

Grapefruit juice

Isoniazid (Rifamate)

Major tranquilizers such as Mellaril and Thorazine

Nefazodone (Serzone)

Nicardipine (Cardene)

Nifedipine (Adalat, Procardia)

Oral contraceptives

Other central nervous system depressants such as Valium and Demerol

Paroxetine (Paxil)

Propoxyphene (Darvon)

Sertraline (Zoloft)

Still feel like taking some drugs??

 

DIETARY RECOMMENDATIONS

  • Eliminate all food allergens from the diet. Common allergenic foods are dairy, soy, citrus, peanuts, wheat, fish, eggs, corn, and tomatoes. Try an elimination trial: Remove suspected allergens from the diet for two weeks. Reintroduce one food every three days. Watch for reactions such as gastrointestinal upset, mood changes, flushing, fatigue, and worsening of symptoms. A rotation diet, in which the same food is not eaten more than once every four days, may reduce sensitivities.
  • Decrease refined carbohydrate intake; increase unrefined carbs & healthy protein; fats in moderation.
  • Eliminate inflammatory foods such as refined foods, sugar, saturated fats (meat and dairy products), alcohol, artificial sweeteners and caffeine.  Use stevia or agave nectar for sweeteners.
  • Eat whole foods such as vegetables, whole grains, fruits, protein, and essential fatty acids (cold-water fish, nuts, and seeds).  Drink tons and tons of water.  Green tea in moderation is good – herbal teas are better.

(Personal note: I gave up all meats & most dairy.  I do eat a little yogurt, cheese, fish & seafood.  My tummy loves me!)

(See Appendices about artificial sweeteners & sodas.  Yes, even Splenda’s bad!)

 

SUPPLEMENTS

There are many supplements that are helpful for fibromyalgia.  I take all of the following except the melatonin and extra zinc.  My sleep has improved just from the extra magnesium before bed and I have enough zinc in my multi-vitamin.  Each person’s symptoms and system are unique, so play with these.  There are others, too, if these don’t do the trick over time.

  • Vitamin C (500 - 1000 mg twice per day) reduces swelling and helps your immune system function better.
  • 5-Hydroxytryptophan (100 mg three times per day) may help with depression and insomnia.
  • B vitamins help reduce the effects of stress: B-complex (100 mg twice a day)
  • Melatonin (0.5 to 3 mg one time before bed) may help sleep.  Do not take with 5HTP.
  • Zinc (30 mg per day) is essential for proper immune function.
  • Calcium and Magnesium – 500 mg calcium + 250 mg magnesium 2 times daily [Muscle tone & bone strength].  Then add an extra 400 mg of magnesium before bed.  [Relaxes muscles and spasms.]
  • Aloe juice – 2 oz. 1 to 2 times daily [A good lubricant and detoxifier for the whole system]
  • Psyllium husks – 1 tablespoon 1 to 2 times daily [Colon health.  Many people with fibro have IBS, too]
  • Multi-vitamin supplement with minerals WITHOUT IRON!! – 1 time daily [Everyone needs this!]
  • Mixed EFA’s (essential fatty acids – oils: GLA, ALA, Omega 3 & 6 all in one.  Should have flax oil, fish oil, primrose oil, etc.) – As directed on label (usually 3 times daily.  Strengths vary.) [Most people in the U.S. are deficient in EFA’s.  Essential for cell health, brain development & overall good health.  I recommend these for everyone.]
  • Try an extra B-12 sublingual tablet when you’re feeling run down.  It gives a burst of energy when needed.

Herbs

  • The following herbs may help increase resistance to stress and strengthen the immune system:

Siberian ginseng (Eleutherococcus senticosus)

Schizandra berry (Schizandra chinensis)

Ashwaganda root (Withania somnifera)

Gotu kola (Centella asiatica)

Astragalus root (Astragalus membranaceus).

Use ginseng alone or with equal parts of two to three herbs. Take as directed two to three times per

day. These may need to be taken for four to six months for maximum benefit.

            DO NOT TAKE ECHINACEA.  It is not recommended for autoimmune disorders!

  • Herbs that alleviate pain and tension include the following:

Black cohosh (Cimicifuga racemosa)

Kava kava (Piper methysticum)

Skullcap (Scutellaria lateriflora)

Passionflower (Passiflora incarnate)

Lavender (Lavandula angustifolia)

Valerian (Valeriana officinalis).

Turmeric (Curcuma longa).  Powerful anti-inflammatory which is also a good detoxifier.

  • Herbs for nerves and memory include Gotu kola (Centella asiatica) and Ginkgo biloba (Ginkgo biloba) 

 

Homeopathy

Homeopathic remedies are highly diluted doses of substances that can actually cause or mimic the problem.  The theory behind homeopathy is that you give someone teeny, tiny doses of the substance and the person will build up a resistance to it.  It’s like a vaccination – your body will form antibodies to resist the cause of the problem.  Some people react better to homeopathy than others, but they are VERY harmless, so worth trying.  Here are a few suggestions: 

  • Arnica for pain, tenderness and stiffness.  Take one dose of 30X or 30C three times daily.  Stop after 3 days to assess the pain.  Can resume if necessary.  Arnica cream or gel is wonderful for pain, too.  Rub in as often as needed.
  • Bryonia helps ease pain that increases with movement and is better when resting.  It also helps constipation.  Take one dose of 30X or 30C three times daily.  Stop after 3 days to assess the pain.  Can resume if necessary.
  • Hypericum is good for prickly pain that radiates along nerve paths, is worse with movement and when touched.  Good for pain in the extremities.  Take one dose of 30X or 30C three times daily.  Stop after 3 days to assess the pain.  Can resume if necessary.
  • Rhus toxicodendron is for people who feel better after moving around.  Take one dose of 30X or 30C three times daily.  Stop after 3 days to assess the pain.  Can resume if necessary. 

 

Physical Medicine

  • Two to four cups of Epsom salts in a warm bath can soothe aching muscles.
  • Essential oils of jasmine, lemon balm, rosemary, and clary sage relieve nervous exhaustion and may be used in aromatherapy. Place several drops in a warm bath or atomizer, or on a cotton ball, and inhale.  Do NOT ingest these or apply them to the skin in an undiluted form.
  • Massage reduces stress and improves circulation.  It works WONDERS for me & I go twice a month.
  • Acupuncture - There are a few well-designed studies showing that acupuncture can help improve fibromyalgia symptoms and the National Institutes of Health recommend acupuncture as a treatment for this condition. Acupuncturists treat people with fibromyalgia based on an individualized assessment of the excesses and deficiencies of qi located in various meridians. In the case of fibromyalgia, a qi deficiency is usually detected in the spleen and/or kidney meridians. Moxibustion (a technique in which the herb mugwort is burned over specific acupuncture points) is used to strengthen the entire energy system. Qualified practitioners may also advise persons with fibromyalgia on lifestyle and diet, and provide recommendations on the use of herbal medicines.
  • Chiropractic - Because fibromyalgia generally includes low back pain and/or neck pain (for which spinal manipulation is beneficial), chiropractors commonly treat people who have this condition. In one small study, women with fibromyalgia reported that they experienced a 77% reduction in pain intensity, 63% improvement in sleep quality, and 75% improvement in fatigue level after receiving 30 chiropractic treatments. Symptom relief continued for 1 month after treatment ended.
  • Exercise - I take a yoga class faithfully once a week & often add a second class when time allows.  Tai Chi would work just as well, as would swimming & water aerobics.

 

THERE’S NO NEED TO SUFFER IN SILENCE.  DON’T BE A VICTIM OF THE MEDICAL PROFESSION!  TAKE CONTROL, TRY DIFFERENT TREATMENTS AND REMEDIES AND THINK LIKE YOU’RE GOING TO BEAT THIS THING!!!!  A POSITIVE ATTITUDE IS CRITICAL TO HEALING.  GIVE IT TIME – IT TOOK ABOUT 1 ½ YEARS FOR ME TO FEEL LIKE A HUMAN BEING AGAIN.

APPENDIX I

DANGERS OF ARTIFICIAL SWEETENERS

(From www.mercola.com)

Let's take aspartame (the key to Equal and Nutrasweet) for starters. Research has found that the components of this deadly ingredient may lead to a wide variety of ailments including:

Epilepsy/seizures

Migraines and headaches

Depression

Brain tumors

Autoimmune diseases

However, Splenda is not a day at the beach either, as research in animals has shown that consuming sucralose comes hand in hand with a plethora of health problems including:

Shrunken thymus glands (up to 40 percent shrinkage)

Enlarged liver and kidneys

Atrophy of lymph follicles in the spleen and thymus

Reduced growth rate

Decreased red blood cell count

Extension of the pregnancy period

Aborted pregnancy

Diarrhea

For these many, many reasons it is wise to avoid artificial sweeteners. In addition, eating too much REAL sugar will also adversely affect your health, as it will cause your blood sugar level to rise. If your blood sugar levels remain elevated (even mildly) over a period of time, your risk of diabetes will increase, which will increase your risk of cancer.

Unlike aspartame, suclarose and other artificial sweeteners that have been cited for dangerous toxicities, stevia is a natural alternative that's ideal for diabetics, those watching their weight and anyone interested in maintaining their health. Stevia can be used in appetizers, beverages, soups, salads, vegetables, desserts -- virtually anything! It is, hands down, the best alternative to sugar you will ever taste.

APPENDIX II

DANGERS OF SODAS

(From www.mercola.com)

How many sodas have you had today? How about your kids? The average American drinks an estimated 56 gallons of soft drinks each year, but before you grab that next can of soda, consider this: one can of soda has about 10 teaspoons of sugar, 150 calories, 30 to 55 mg of caffeine, and is loaded with artificial food colors and sulphites.

This is an alarming amount of sugar, calories and harmful additives in a product that has absolutely no nutritional value. Plus, studies have linked soda to osteoporosis, obesity, tooth decay and heart disease. Despite this, soda accounts for more than one-quarter of all drinks consumed in the United States .

Teenagers and children, who many soft drinks are marketed toward, are among the largest consumers. In the past 10 years, soft drink consumption among children has almost doubled in the United States . Teenage boys now drink, on average, three or more cans of soda per day, and 10 percent drink seven or more cans a day. The average for teenage girls is more than two cans a day, and 10 percent drink more than five cans a day.

While these numbers may sound high, they’re not surprising considering that most school hallways are lined with vending machines that sell, of course, soft drinks. It’s not uncommon for schools to make marketing deals with leading soft drink companies such as Coca-Cola from which they receive commissions--based on a percentage of sales at each school--and sometimes a lump-sum payment.

The revenues are used for various academic and after-school activities, but what activity could be worth devastating the students’ health, which is exactly what consuming all that soda is doing? Getting rid of vending machines in schools--or replacing their contents with pure water and healthy snacks--could make a big difference, as vending machines can increase the consumption of sweetened beverages by up to 50 or more cans of soda per student per year.

Let’s take a look at some of the major components of a can of soda:

Phosphoric Acid: May interfere with the body's ability to use calcium, which can lead to osteoporosis or softening of the teeth and bones. Phosphoric acid also neutralizes the hydrochloric acid in your stomach, which can interfere with digestion, making it difficult to utilize nutrients.

Sugar: Soft drink manufacturers are the largest single user of refined sugar in the United States . It is a proven fact that sugar increases insulin levels, which can lead to high blood pressure, high cholesterol, heart disease, diabetes, weight gain, premature aging and many more negative side effects. Most sodas include over 100 percent of the RDA of sugar.

Aspartame: This chemical is used as a sugar substitute in diet soda. There are over 92 different health side effects associated with aspartame consumption including brain tumors, birth defects, diabetes, emotional disorders and epilispsy/seizures. Further, when aspartame is stored for long periods of time or kept in warm areas it changes to methanol, an alcohol that converts to formaldehyde and formic acid, which are known carcinogens.

Splenda:  See discussion of artificial sweeteners in Appendix I.

Caffeine: Caffeinated drinks cause jitters, insomnia, high blood pressure, irregular heartbeat, elevated blood cholesterol levels, vitamin and mineral depletion, breast lumps, birth defects, and perhaps some forms of cancer.

Tap Water: I recommend that everyone avoid drinking tap water because it can carry any number of chemicals including chlorine, trihalomethanes, lead, cadmium, and various organic pollutants. Tap water is the main ingredient in bottled soft drinks.

Soda is one of the main reasons, nutritionally speaking, why many people suffer health problems. Aside from the negative effects of the soda itself, drinking a lot of soda is likely to leave you with little appetite for vegetables, protein and other food that your body needs.

If you are still drinking soda, stopping the habit is an easy way to improve your health. Pure water is a much better choice. If you must drink a carbonated beverage, try sparkling mineral water.

Good luck!  Let me know if I can help in any way.

   REFERENCES

Chaitow, Leon, N.D., D.O., M.R.O.  “Fibromyalgia: The Muscle Pain Epidemic,” Health World online:  http://www.healthy.net/asp/templates/article.asp?PageType=Article&ID=587, accessed July 6, 2005.

 “Fibromyalgia.”  University of Maryland Medical Center, http://www.umm.edu/altmed/ConsConditions/Fibromyalgiacc.html, accessed 07/06/05

lass, Jennifer, Ph.D. and Park, Denise, Ph.D., “Cognitive Function & Fibromyalgia.”  The University of Michigan. Accessed at the National Fibromyalgia Association website: http://fmaware.org/index.html, July 6, 2005.

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